In the 1980s, newborns with complex congenital heart disease (CCHD) began to survive past one year for the first time due to advances in cardiothoracic surgery and cardiovascular medicine. “Heart Connection” will be a website exploring what survivors of this condition experience daily, leaving evidence of how CCHD adults have been forced to reinvent and reimagine new ways of navigating the world with their tired bodies and busy minds, while creating meaning in their lives for the generations succeeding them. The project envisions three main pages. One page is for the artwork of adults with CCHD documenting their lives through audio, video, creative writing and photography. A second page is committed to inspiring and bringing hope to parents who have children with CCHD. A third page is dedicated for resources needed by CCHD adults and children to live meaningful and productive lives.
